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Tube feeding neither stops dementia disease progression nor prevents imminent death An increasing number of guidelines highlight the lack of evidenced benefit and potential risks of enteral tube feeding Enteral (tube) feeding for people living with severe dementia information to help people living with severe dementia, their family members and carers and their healthcare professionals discuss the options what are the options
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People living with severe dementia often develop problems with eating and drinking The balance of benefits and harms associated with enteral tube feeding for people with severe dementia is not clear They may have swallowing problems.
Patients with advanced dementia are among the most challenging patients to care for because they are often bedridden and dependent in all activities of daily living
Difficulty eating is a common complication of advanced dementia and can manifest as dysphagia, the inability to feed oneself, and the refusal to eat 4 7 many professional society guidelines advise against recommending enteral feeding tubes in patients with advanced dementia and instead suggest oral feeding (see box 1) Tube feeding has many risks It can cause bleeding, infection, skin irritation, or leaking around the tube
It can cause nausea, vomiting, and diarrhea The tube can get blocked or fall out, and must be replaced in a hospital Many people with alzheimer’s disease are bothered by the tube and try to pull it out To prevent that, they are often tied down or given drugs
Once eating difficulties arise in patients with advanced dementia, family caregivers are often faced with the difficult decision to place, or not place, a feeding tube for nutritional support.
